Our Goal
Providing services dedicated to improving quality of medical care for rare cancer patients in Russian Federation and CIS countries
Our Targets
1
Healthcare improvement
Improvement of healthcare organisations in rare tumours area, through interaction improvement between regional & federal healthcare organisations
2
Expert centres
Participation in creation of expert centres in Russian Federation & CIS countries
3
Patient prioritisation
Prioritisation of patient problems with rare cancer tumours
4
New treatment methods
Establishing conditions for development of new & effective treatment methods for rare tumour diseases
5
Research access
Creating access opportunities for patient participation in Russian & international clinical trials
6
Treatment quality
Improving treatment quality & providing consistent treatment for patients with rare cases of oncological diseases
7
Informing
Increasing population's knowledge about identification & treatment of rare oncological diseases
8
Registers
Creating & filling national & international rare oncological disease patient registers
9
Experience exchange
Organising opportunities for knowledge exchange among different specialists about rare types of oncological diseases on national & international stages
10
Information
Increasing oncologists' & other healthcare specialists' knowledge level about diagnosis & treatment of rare oncological diseases
11
Recommendations & standards
Participation in developing clinical recommendations & standards for treating rare types of oncological diseases
12
Events
Organising congresses, conferences, workshops & expert councils, dedicated to treatment of rare types of oncological diseases
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