Our Goal
Providing services dedicated to improving quality of medical care for rare cancer patients in Russian Federation and CIS countries
Our Targets
Healthcare improvement
Improvement of healthcare organisations in rare tumours area, through interaction improvement between regional & federal healthcare organisations
Expert centres
Participation in creation of expert centres in Russian Federation & CIS countries
Patient prioritisation
Prioritisation of patient problems with rare cancer tumours
New treatment methods
Establishing conditions for development of new & effective treatment methods for rare tumour diseases
Research access
Creating access opportunities for patient participation in Russian & international clinical trials
Treatment quality
Improving treatment quality & providing consistent treatment for patients with rare cases of oncological diseases
Informing
Increasing population's knowledge about identification & treatment of rare oncological diseases
Registers
Creating & filling national & international rare oncological disease patient registers
Experience exchange
Organising opportunities for knowledge exchange among different specialists about rare types of oncological diseases on national & international stages
Information
Increasing oncologists' & other healthcare specialists' knowledge level about diagnosis & treatment of rare oncological diseases
Recommendations & standards
Participation in developing clinical recommendations & standards for treating rare types of oncological diseases
Events
Organising congresses, conferences, workshops & expert councils, dedicated to treatment of rare types of oncological diseases
Become a member
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