Kaprin Andrei Dmitrievich
President Rare Cancer Society
Doctor of Medical Sciences, Professor, Academician of the Russian Academy of Sciences, Corresponding Member of the Russian Academy of Education, Member of the Presidium of the Russian Academy of Sciences, Member of the Presidium of the Russian Academy of Sciences Honored Doctor of the Russian Federation, General Director of the Federal State Budgetary Institution "National Medical Research Center of Radiology" of the Ministry of Health of the Russian Federation, laureate of the Prize of the Government of the Russian Federation in the field of science and technology. Chief freelance specialist - oncologist of the Ministry of Health of Russia (Central Federal District, SK FD)

Director General of the Federal State Budgetary Institution "National Medical Research Center of Radiology" of the Ministry of Health of Russia, Director of the P.A. Herzen, Chief Freelance Oncologist of the Russian Ministry of Health.
Fedenko Alexander Alexndrovich
CEO Rare Cancer Society
Doctor of Medical Sciences
Expert of the European Society of Clinical Oncology (ESMO) for the treatment of sarcomas and GIST.
Expert of the Russian Society of Clinical Oncologists (RUSSCO).
Member of the American Society of Clinical Oncology (ASCO) and
Connective Tissue Cancer Society (CTOS).

"In my practice, I meet with a large number of patients suffering from rare oncological diseases, and they often look lost. This is due not only to the fact that they were diagnosed with "oncology", but also because their diagnosis belongs to the category of "rare", which means that there is not enough information on diagnosis and treatment, few specialists have sufficient experience, and to this day Today there is a lack of effective drug capacity due to the lack of large clinical trials. We created our organization with the aim of improving treatment results and quality of life for patients with rare tumors. And we will do our best to ensure that patients who have been diagnosed with a "rare" diagnosis receive quality treatment. Rare tumors are not so rare! "
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