Fedenko Alexander Alexndrovich
CEO Rare Cancer Society
Doctor of Medical Sciences
Expert of the European Society of Clinical Oncology (ESMO) for the treatment of sarcomas and GIST.
Expert of the Russian Society of Clinical Oncologists (RUSSCO).
Member of the American Society of Clinical Oncology (ASCO) and
Connective Tissue Cancer Society (CTOS).
"In my practice, I meet with a large number of patients suffering from rare oncological diseases, and they often look lost. This is due not only to the fact that they were diagnosed with "oncology", but also because their diagnosis belongs to the category of "rare", which means that there is not enough information on diagnosis and treatment, few specialists have sufficient experience, and to this day Today there is a lack of effective drug capacity due to the lack of large clinical trials. We created our organization with the aim of improving treatment results and quality of life for patients with rare tumors. And we will do our best to ensure that patients who have been diagnosed with a "rare" diagnosis receive quality treatment. Rare tumors are not so rare! "